Ipsen

We spoke to Professor David Jones about Primary Biliary Cholangitis (PBC), its common symptoms, and why recognizing fatigue as a distinct systemic symptom really matters.

Pediatric low-grade gliomas (pLGGs) are the most common brain tumors in children. Yet, as rare tumors, their impact and the challenges faced by children and families are not well understood. Some children require years of care, and up to half may experience tumor regrowth following their initial treatments. The impacts can be lifelong, affecting learning, development, vision, and overall quality of life. This Brain Tumor Awareness Week, we are raising awareness of rare pediatric brain tumors and the importance of keeping children at the center of oncology research and innovation. Because every child deserves the opportunity to benefit from progress designed with their needs in mind.

Advancing research for children with rare brain tumors like pediatric low-grade gliomas (pLGGs) requires pairing scientific innovation with everyone that has an expert insight into the condition. That includes the children themselves, as well as their day-to-day healthcare providers, families, and caregivers. Their invaluable insights can help deepen our understanding of unmet patient needs and ensure that research is focused on making the tangible difference that children and their families want to see.

While pLGG may not be life-threatening, the impact of the condition can be life changing. Lily May, who was diagnosed with pediatric lo-grade glioma (pLGG) on her optic nerve, lives with significant vision loss. The course of her family’s life has completely changed. While brain tumors like pLGGs affect relatively few children, their impact can be lifelong, affecting learning, development, vision, and quality of life. Lily May’s story strengthens the case for children-first medicine: research and treatments designed around children’s distinct needs from the very start. During Brain Tumor Awareness Week, we are shining a light on the urgent need to advance research, improve outcomes, and ensure progress reaches the specific children who need it most.

Nessuno arriva al lavoro solo come dipendente. Carole lavora in Ipsen. È anche una figlia e una caregiver. A sua madre è stata diagnosticata la malattia di Alzheimer otto anni fa. Nel corso degli anni, questa esperienza ha cambiato il loro rapporto in modi che Carole non avrebbe mai immaginato, creando tra loro una nuova vicinanza che oggi per lei è molto preziosa. Grazie, Carole, per aver condiviso la sua storia. Dietro ogni titolo professionale c’è una storia umana. Qual è la tua? #ThisisIpsen

Nadie llega al trabajo siendo solo un empleado. Carole trabaja en Ipsen. También es hija y cuidadora. A su madre le diagnosticaron Alzheimer hace ocho años. Con los años, esta experiencia ha cambiado su relación de formas que Carole nunca habría imaginado, creando entre ellas una nueva cercanía que hoy valora profundamente. Gracias, Carole, por compartir su historia con nosotros. Detrás de cada puesto de trabajo hay una historia humana. ¿Cuál es la tuya? #ThisisIpsen